When Jonathan last saw his neurosurgeon when he was just shy of 5 months post-op, and I have to admit, I felt a little defeated that we weren’t done our helmet therapy, right then and there. We were initially told 4 months of therapy – until he’s 8 months old. This conflicted slightly, as he […]
Baby Helmet Therapy Tips and Advice
When I learned of our baby’s craniosynostosis diagnosis, and that I wanted to push and fight for him to have the less invasive surgery, I also knew that baby helmet therapy was part of that package deal. The surgery fixed about 20% of his sagittal head shape, but the four months of helmet therapy was […]
The First Month in a Cranial Helmet
If what we were told when we had our initial consult with our neurosurgeon and the Nurse Practitioner rings true, Jonathan is already done 25% of his helmet therapy! 1 month down and 3 months to go! I’ve always had it in my head that it would be such a great Christmas present to be […]
Craniosynostosis is Why You Should Pay Attention to Your Baby’s Head Shape
When our third baby boy was born we couldn’t have been more happy. Labor and delivery was fast and uneventful, and I couldn’t wait so snuggle our precious new bundle skin-to-skin. While we were enjoying our snuggle session, one of the nurses did a quick examination that’s done on every newborn. Upon this exam it was discovered […]
Life (So Far) With a Cranial Helmet
If I could sum it up in one thought, what life is like so far with Jonathan’s cranial helmet, it would be “not what I expected”. Not necessarily good, not bad — just not what I expected. I was pleasantly surprised when he got his helmet fit that it wasn’t visions of paper mache like […]
The Other Side of Craniosynostosis Surgery
From suspicion, to diagnosis, to surgery, all in a matter of 20 days, we are officially on the other side of sagittal synostosis. It’s been a stressful and emotional whirlwind of a last few weeks and I feel like the dust is finally starting to settle. Maybe. I managed to keep myself fairly distracted before […]
Sagittal Craniosynostosis: Our Journey Begins
Right from birth I wondered why my brand new baby had a ridge on the top/back of his skull. I just assumed perhaps his parietal skull bones overlapped from the trauma of a rather fast vaginal delivery and that they would correct themselves within a week or two. I asked about this at our two week and […]